Vono Medical Supplies now carries Brought To Our Senses: A Novel
Vono Medical Supplies in Springfield, IL is where you need to go for home medical equipment. They carry all the medical products caregivers need to keep loved ones comfortable and cared for at home. And now you can pick up a copy of Brought To Our Senses there too! Look for the novel at the cash registers or on the front table with other educational reading materials. Caregivers will find inspiration in the family drama about four troubled siblings brought together by their mother’s health crisis.
Alzheimer’s Speaks Radio Interview on Family Saga Novel Brought To Our Senses
Heads up so you can tune in and listen to my interview with the fantastic Lori La Bey of Alzheimer’s Speaks about my new dementia fiction saga Brought To Our Senses. You can hear our interview for the first time on Thursday, December 1, 2016 at 1 pm CST, or you can listen anytime afterwards right here. Lori and her panel have great perspectives on the topics of the novel and bring up some really good points. Let me know what you think about our discussion! Continue reading →
With the recent release of my novel Brought To Our Senses, I’ve been busy with a whirlwind of book launch activities. Phew, I’ve finally found a moment to catch my breath and would like to share my gratitude for the positive response I’ve received so far.
One of my goals for publication was to give back and help others affected by dementia. I know just how draining and difficult this disease can be, so I want to help those who I know need the support. That’s what I’ve been up to while introducing my book this month. Continue reading →
Hooray! It’s been a long journey to get to this day. I want to take a deep breath and enjoy this accomplishment. The November release of Brought To Our Senses is well timed because it’s National Alzheimer’s Disease Awareness Month and National Family Caregivers Month. This book will speak to those affected by dementia and those charged with the care of aging parents. Continue reading →
Alzheimer’s Daughter by Jean Lee is a triple threat memoir with an unthinkable premise. One parent diagnosed with Alzheimer’s disease is a crisis, two parents diagnosed with Alzheimer’s is a disaster. Dual diagnoses and decline at the exact same time is a tragedy of epic proportions.
Alzheimer’s Daughter follows adult sisters, Rosie and Annette, as they discover and manage the progressing cognitive impairments of their aging parents. Ed and Ibby Church are a loving couple in their eighties who’ve been married for over sixty years. Their two children are united in efforts acting as responsible caregivers to keep the parents they love safe through heartbreaking decisions, from the first telling hints of memory lapses through the inevitable end of life issues.
I’ve been seeing some great publicity lately for the movie Still Alice with Julianne Moore, and I can’t wait for this movie to be released sometime in 2015! It’s the film adaptation of the book by Lisa Genova, and I think it will go a long way to help raise awareness for Alzheimer’s disease. Here’s a clip from the film:
Today I welcome the insight of a special caregiver. Cameron Von St. James has been kind enough to share his struggles and triumphs as a caregiver for his wife Heather. While every caregiving journey is different, we all share the same fears, frustrations, and overwhelming emotions that sometimes threaten to derail our efforts on behalf of those we love most. Read Cameron’s story here and then watch his inspirational video. I wish Cameron and his family many continued blessings and want to thank him for providing inspiration to help others dealing with similar challenges.
Being a Caregiver and Holding Onto Hope
By Cameron Von St. James
For my wife Heather and me, life completely changed on November 21, 2005. It was on that day that a doctor told us Heather had malignant pleural mesothelioma, a rare and very deadly type of cancer. On that day, I became her caregiver, and I quickly learned that I was not prepared for the job. Only three months earlier, we were celebrating the birth of our first and only child, Lily. We pictured spending the late fall celebrating Thanksgiving and getting ready for our first Christmas as a family of three. Instead, we spent it in doctors’ offices, and our lives quickly became characterized by chaos.
Recently I was delighted to learn the rest of the story from Wendy herself, as she contacted me to answer my question. As it turned out, her mother’s illness had progressed to the point that she needed to be moved to a nursing home. The piano recitals were no longer possible from the new facility, and the therapeutic ritual became another short but sweet memory in Wendy’s Alzheimer’s journey with her mother.
All dementia caregivers have stories to share, events in the progression of this devastating illness that have changed them profoundly. While these stories are all personal tributes to loved ones, there is a bittersweet commonality between them to which all caregivers can relate. Wendy was kind enough to share another of her stories with me, one she originally submitted to her local newspaper for Alzheimer’s Awareness Month. Thanks to Wendy for filling in the blanks and also allowing me to share her poignant story with others here.
Many enthusiastic and passionate supporters came out on a sunny and fiercely windy morning in Southwind Park for the Walk to End Alzheimer’s on September 22, 2012 in Springfield, Illinois. Not only was the event a fundraiser, but it was also a moving tribute to those who currently suffer from or care for a loved one with Alzheimer’s disease.
I volunteered to help find people who might be interested in participating in clinical research trials, and in this role was reminded how much fear is associated with Alzheimer’s disease. As I walked through the crowd and talked to attendees, I was greeted with much anxiety and heard often, “No, I don’t want to ever know if I might get Alzheimer’s disease.” This response reinforced the need to find a cure for me because people are so afraid of this devastating illness. Continue reading →